Picture of all women team with the title "about us: working to improve care for populations with complex needs in Indana"

Who we are

The Indiana Complex Care Coordination Collaborative (IC4) is an innovative program built within Indiana University School of Medicine in the Department of Pediatrics' Division of General and Community Pediatrics. The team is an interdisciplinary team of nurses, social workers, doctors and family representatives, working together to improve the care of populations of children with medical complexity (CMC) and adults with intellectual or developmental disabilities (AIDD).

Current projects:

  • Coach care coordinators serving children with medical complexity,
  • Facilitate improvements in statewide care support to promote coordination of care and access to services which meet the needs of children with special health care needs, and
  • Deliver medical education for enhanced primary care skills in caring for persons with disabilities and complex needs.

This website was made possible by Indiana Family and Social Services Administration funded through Section 9817 of the American Rescue Plan Act as a Home and Community Based Services (HCBS) Stabilization Grant.

Read More about IC4

Our Vision

Our vision is to improve opportunities for the patients and families we serve to live their best lives.

The U.S. Surgeon General brought attention to the need to improve care for patients with disabilities in 2005, almost 20 years ago. There are ongoing significant needs to promote and advance this call to action. Across all abilities, each person must be able to:

  • Maintain a healthy lifestyle to live their best lives;
  • Receive needed health care and support services; and,
  • Have care which addresses the whole person with dignity.

Read more at CDC Health and Disability: https://www.cdc.gov/disability-and-health/

IC4 Values

Person and family-centered care

All our work is done in collaboration with important partners:

A comprehensive and life-course perspective

Care coordination supports the use of the LifeCourse Nexus "Charting the LifeCourse" framework. 

The goal is to help individuals with disabilities at any age:

  • Develop a vision for a good life.
  • Think about what they need to know and do.
  • Identify how to find or develop supports, and
  • Discover what it takes to live the lives they want to live.

Community-based services

IC4 currently works around the state in primary care offices in private practices and health systems, including to date:

  • Ascension,
  • Eskenazi,
  • IU,
  • Johnson Memorial,
  • Parkview,
  • Major Health Partners, and
  • Witham.

We continue to work to grow in communities around the state.

pillars of training

How we work

IC4 builds and delivers curricula to train nurses, clinicians and their teams to provide better and easier care for patients who have complex needs.

Acknowledgments and References

  • Academic Autistic Spectrum Partnership in Research and Education (AASPIRE). Funded by the National Institute of Mental Health, # R34MH092503. AASPIRE Healthcare Toolkit, Portland Oregon, https://autismandhealth.org/
  • Autism Connection of Pennsylvania. https://autismofpa.org/autismrelationships/. How to take a Shower. How to take a Bath.   
  • Center for Autism Services and Transition (CAST). Ohio State University Wexler Medical Center. Resources for Patients and Families. Resources for Medical Professionals. Columbus Ohio, https://wexnermedical.osu.edu/primary-care/cast
  • Developmental Disabilities Primary Care Initiative. Tools for the primary care of adults with intellectual and developmental disabilities Surrey Place, Toronto Canada, 2011. https://ddprimarycare.surreyplace.ca/tools-2/
  • Office of Developmental Primary Care. University of California San Francisco. https://odpc.ucsf.edu/clinical
  • Oregon Health & Science University. Institute on Development and Disability- Oregon Office on Disability and Health, University Center for Excellence in Developmental Disabilities and the Oregon Self-Advocacy Coalition. Taking Charge of My Health Care Toolkit, 1st edition Portland Oregon: OHSU, 2020. https://www.ohsu.edu/oregon-office-on-disability-and-health/taking-charge-my-health-care-toolkit
  • Supporting Access for Everyone Initiative. Weitzman C, Nadler C, Blum NJ, et al. Health Care for Youth With Neurodevelopmental Disabilities: A Consensus Statement. Pediatrics. 2024;153(5):e2023063809. Adapted Neurodevelopmental Disabilities HealthCare Bill of Rights to Easy Read. https://safedbp.org/