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Explore the website:

Tap to flip the cards.

group of people with intellectual disabilities in a painting class

We will explore fitness and the 6 F's of Living Life.

Learn how to make goals and manage your own health.

Fitness and Healthy Habits
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We will explore health care visits and the Medical Home.

Learn how to work with your health care team and get the services you need.

Health Care Visits
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We will explore health conditions and action plans.

Learn how to become confident in taking care of your health conditions.

Common Illnesses
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This website has been created for patients and families.

Our goal is to organize info that we think will help.

We want you to:

  • Feel skilled as you take care of your own health every day;
  • Know more about what you need from healthcare and how to get it;
  • Be more confident in telling your healthcare team what you need; and
  • Work on setting doable goals for your future.
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Patient Bill of Rights

  • Be seen as a person first.
  • Get care when you need it with respect and kindness.
  • Be part of the decision making. Give consent or assent or refuse it.
  • Get care that is set up to fit your needs.
  • Be talked to in a way that you prefer and so you can understand.
  • Use the support and technology you need.
  • Speak up for your own needs and interests.
  • Get care that does not cause you trauma.
  • Get the right care for pain and anxiety.
  • Get care that is free from restraint, coercion, abuse, or neglect.

This patient bill of rights is adapted for readability from the Neurodevelopmental Disabilities Healthcare Bill of Rights of the SAFE Initiate - Supporting Access for Everyone from DBPNet. https://safedbp.org/